Man With ALS Sails Solo Thanks To New Technology
Steve Heronemus is defying odds by taking on the open sea. In 2003, Steve was diagnosed with ALS (amyotrophic lateral sclerosis,) a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. It has left him with limited mobility. Constrained to a wheelchair, he thought he'd never sail again.
Sailing Education Association of Sheboygan, SEAS, is working with Heronemus to strengthen their Adaptive Sailing Program, which is meant to teach individuals with disabilities how to sail. "This project is not about getting me into a sailboat again," Heronemus, who can no longer speak because of ALS, wrote in an email. "Our purpose is to bring the joy of sailing, the freedom, independence and accomplishment of harnessing the wind and water in Sheboygan's beautiful lakefront to the disabled."
Thanks to new technology, he has sailed the open see - by himself! He sailed the Sheboygan sea by using a bite switch to steer and buttons to trim his sails. Heronemus is an advocate for the disease and wants to bring awareness and even find a cure.
Read the full story here.